About / Accomplishments
The Joanna M. Nicolay Melanoma Foundation (JMNMF) is a non-profit, public charity founded in January, 2004 to foster education, advocacy and research. In just nine-years, the Foundation has grown dramatically to become an influential voice in the melanoma skin cancer community and is now established as a national, and international, voice for melanoma prevention, detection, care and cure. The JMNMF has organized a multitude of volunteers to advance a comprehensive, strategic platform of goals and initiatives; and boasts an extremely active volunteer Board of Directors, in addition to valuable Advisory and Honorary Boards that enable the Foundations success, expansion, and growing visibility.
The Joanna M. Nicolay Melanoma Foundation is proud of numerous achievements to date, most specifically:
- Underwriting melanoma research at numerous prestigious cancer centers across the U.S., through the Foundations Research Scholarship Awards (RSA) earned by the best and brightest young graduate student scientists, to expand the pipeline of researchers, advance discovery of effective treatments, and ultimately, find a cure for melanoma. $100,000 in grants awarded in 2013!
- Launched in 2006, JMNMFs RSA program is the 1st U.S. program for graduate student melanoma researchers.
- To date, active participation by nearly 150 graduate student researchers, representing 50 universities affiliated with National Cancer Institute (NCI) - Designated Cancer Centers or the Association of American Cancer Institutes.
- 2013 applications set new record of 44 graduate researchers applying for RSA funding! RSA program reflects solid trend of growth 2012 experienced dramatic 60% increase over 2011 with 42 students and 75% research institutional increase!
- RSA funding increased to $100,000 in 2013 to ten researchers; expanded to nine awardees in 2012; and seven in 2011.
- Launching a comprehensive High School health curriculum, Teen Skin Cancer & Melanoma Awareness, for the key demographic of students (and their families), to learn the deadly risks of melanoma skin cancer and UV-safe preventative and detection practices.
- Dramatic pre- and post-assessment results occur in student knowledge regarding skin cancer, prevention and detection, and UV-safe practices. When students were asked: Do you know What Melanoma is? At which age skin cancer can strike? What the skin cancer detection alphabet - ABCD and 2Es means? What are the dangers of tanning bed use? When skin cancer can strike? Dramatically, due to the curriculum, student awareness and knowledge doubled, tripled and more!
- Since the curriculum introduction in 2009, use by entire schools systems, expanded 400% in and outside the state of MD.
- Ongoing targeted initiatives, and multi-channel outreach, to ensure broader national awareness for melanoma prevention and detection by the general public. 2013 Skin in the Game Campaign!
- 2013 Skin in the Game campaign promotes: melanoma skin cancer awareness; prevention & detection practices; & leverages fundraising to further the Foundations mission recognizing that EVERYONEs Got Skin in the Game!
- Public Service Announcements featuring melanoma survivors promoting UV/sun-safe practices former Miss Maryland, Brittany Lietz-Cicala and Cam Cameron, former Offensive Coord. of the Baltimore Ravens.
- Legislative Victories key testimony and support for total bans on tanning bed use by minors states of CA, VT, OR, VT Chicago & Springfield, IL, Howard Co., MD and NY (under 17 ban); in RI & UT parental consent victories.
- Ongoing activity in federal, state & county legislative/regulatory hearings on FDA reclassification of tanning beds, age restriction, guardian consent & cancer warnings. Testified and instrumental in current FDA public comment initiative.
- Organized charity fundraising teams continue to raise awareness at numerous popular sporting events.
- Got Skin? Get Checked! billboard & poster public advertising and skin cancer screening campaigns.
- Providing a broad spectrum of essential advocacy and care resources for patients, caregivers and the entire melanoma community.
- Patient Resource Cancer Guide: Melanoma Educational grant funding awarded to JMNMF by Merck & Co., Amgen, Genentech, and Prometheus Laboratories to publish100,000 comprehensive guides with accurate, up-to-date information about melanoma for newly-diagnosed and advanced melanoma patients, and their caregivers. Over 40,000 pre-orders for the late-2012 release. Copies available firstname.lastname@example.org.
- Advocacy Outreach Over 30,000 educational materials & sunscreen to hospitals & health agencies.
- One-on-One interaction and advocacy support to melanoma patients, families and entire community.
- Comprehensive website as voice for melanoma prevention, detection, care & cure!- www.melanomaresource.org.
Got Skin? Learn these alarming facts:
- Melanoma is the most serious and lethal form of skin cancer and accounts for 75% of all skin cancer deaths..
- One person dies every 56 minutes in the U.S. from melanoma.
- Melanoma is the most common cancer for young adults ages 25-29; and,
- Second most common cancer in adolescents and young adults 15-29 years old.
- In 2013, 76,690 new cases of melanoma are projected to be diagnosed in the U.S.; and
- 9,480 individuals are expected to die, up 9.2% and 7.8% respectively over 2011.
- The current lifetime risk of developing melanoma is 1 in 50.
- Melanoma incidence rates have been increasing for at least 30 years; 2.8% per year from 2005 2009.